About GIST Cancer UK
We Support Patients, Promote Treatments and Research Cures...
GIST Cancer UK is run entirely by volunteers who are either GIST cancer patients themselves or who have close family members who are. It aims to support and inform GIST cancer patients, and to fund research to improve treatment for this rare cancer.
GIST Cancer UK is a charitable trust which acquired its charitable status in April 2009. Previously it was a subgroup of Sarcoma UK, and the two organisations continue to maintain a close working relationship. Originally called GIST Support UK it changed its name in 2019 to emphasise that it is a cancer charity.
Our Organisation
Our charity »
See our objectives, membership, funding, and governance arrangements.
Our policies »
Review our policies including those on privacy, data protection, social media, safeguarding and merchandising.
Our people »
Read about our Trustees, Patrons, Volunteers.
What we do
We provide information and offer support
- Provide a confidential phone helpline
- Run patient/carer meetings
- Support specialist PAWS-GIST clinics
- Enable the sharing of patient and carer experiences
- Operate a private online patient/carer forum
- Provide access to specialised mental health and well-being provision
- Produce a regular newsletter
Further information:
♦ Get Information »
♦ Get Support »
We fund and stimulate research
- Work with healthcare professionals to identify research priorities
- Fund research into treatments
- Monitor and support funded research
- Make GIST samples available to the research community
- Disseminate research outcomes
- Provide updates on clinical trials
- Explore patient perspectives of living with a GIST to inform practice
Further information:
♦ Research Papers (published) »
♦GCUK Research (current) »
We engage with others on behalf of GIST patients
- Maintain an up-to-date website
- Produce written resources reflecting best practice
- Represent patients at national and international conferences and events
- Work closely with related charities
- Lobby for effective treatments
- Work with health agencies to support better care
- Fundraise to sustain our work
Further information:
♦ Get Involved »
♦ Donations & Fundraising »