Private Online Patient & Carer Forum

Exchange news and views with other members on our Forum.

Our Online Forum

The online forum provides a virtual space to speak to other GIST patients.  Access is restricted to those who have registered with GCUK so you won't be inundated with unsolicited emails that are not GIST-related.  You can Register here.

There's no limit to the questions asked (as long as its broadly GIST-related) but typically people ask about specialist and non-specialist centres, treatments, handling the side-effects of drugs,  health and travel insurance amongst many other things.  You'll be able to tap into the perspectives of a broad community of experienced GISTers.  You don't have to ask questions - you can just 'lurk'.

The Forum is moderated

"Please be respectful of others and abide by our social media policy."

GCUK Code of Practice for online activity

Users must:

  • Treat others and their experiences with respect.
  • Avoid personal attacks on health care professionals and others involved in the care and support of GIST patients.
  • Respect confidentiality and not share the views or experiences of others beyond the forums unless approved by that person.

Users should:

  • Be supportive of those with a GIST and those providing care, treatment and support for those undergoing treatment sharing their own experiences when appropriate
  • Share blog posts, articles and other content which might be of interest to the community.
  • Ensure that messages are as short and succinct as possible.
  • Avoid using capital letters except where required.
  • Indicate their home location and if they are willing to be contacted.

Users must not:

  • Create or transmit material that might be defamatory.
  • Discriminate on the basis of race, age, sex, religious or political belief, national origin, disability, sexual orientation or any other characteristic protected by UK law.
  • Post articles that have copyright protection. (Post the URL, i.e. website address, instead).
  • Post messages, images or links to material or content that is inappropriate for other users.
  • Use platforms provided by GCUK for advertising purposes.
  • Use platforms provided by GCUK for illegal or criminal activities.
  • Send offensive or harassing material to others.
  • Broadcast views on social, political, religious or other non-GIST related matters.
  • Post, upload, forward or link spam, junk email, chain emails and messages.
  • Send or post messages or material that could damage GCUK’s image or reputation.

GCUK will:

  • Ensure that all users are aware of expected practice.
  • Monitor activity and take appropriate action where necessary.